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Grant Abstract
Demographic Patterns of Eugenic Sterilization in Five U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
PROJECT NARRATIVE Between 1907 and the mid-1970s, 32 US states passed and implemented eugenic sterilization laws that authorized the sterilization of people considered unfit. Our epidemiological,… -
Collection
Screening Embryos for Psychiatric Conditions: Public Perspectives, Ethical and Social Issues
The number of genomic loci identified to be associated with psychiatric disorders have substantially increased over the last decade. Alongside developments in polygenic embryo screening (PES; or PGT-…- polygenic embyro screening
- Polygenic risk scores
- Psychiatry
- Reproductive Decision Making
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Video
ELSIcon2022 Flash: What Led to the Abolition of Iowa’s State Eugenics Program in 1977?
ELSIcon2022 • Flash • May 31, 2022 Bridget Easler, Breanna Rinker, Alexandra Minna Stern, Elyse Thulin, Nicole Novak Iowa’s Board of Eugenics (BoE), which oversaw the sterilization of 1,910…- Live
- Flash
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
ELSIcon2022 Late-Breaking: Impact of a direct-to-consumer (DTC) report on Alpha-1 antitrypsin deficiency (AATD) risk on clinical diagnosis of disease and on self-reported behaviors
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Sarah Elson Background: Alpha-1 antitrypsin deficiency (AATD) is an autosomal co-dominant condition that predisposes…- Live
- Networking Session
- Late-breaking Abstracts
- precision medicine
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Grant Abstract
Community Consultation as an Ethics Method
Over the past decade researchers, institutions and research sponsors have engaged in various forms of discourse with minority and indigenous populations in the US and abroad. These "community…- behavioral /social science research tag
- Clinical Research
- community health services
- data collection methodology /evaluation
- Ethics
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News
CERA Working Groups - Call for Proposals
The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…- working group
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Grant Abstract
Trans/Forming Genomics: Guidance for Research Involving Transgender and Gender Diverse People
PROJECT NARRATIVE The recent explosion in biobanking, more routine collection of data on gender identity, and rapid expansion of research in transgender and gender diverse (TGD) populations has…- gender affirmation
- gender diversity
- gender expression
- polygenic risk score
- precision medicine
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Grant Abstract
Behavioral Epigenetics in Children: Exploring the Social and Ethical Implications of Translation
This Pathway to Independence Award (K99/R00) will prepare the candidate to become an interdisciplinary ELSI researcher with a high-quality, independently funded research program exploring the…- Address
- Adopted
- Anxiety
- Area
- Attention
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Grant Abstract
Behavioral Epigenetics in Children: Exploring the Social and Ethical Implications of Translation
This Pathway to Independence Award (K99/R00) will prepare the candidate to become an interdisciplinary ELSI researcher with a high-quality, independently funded research program exploring the…- Address
- Adopted
- Anxiety
- Area
- Attention
-
Video
September 2024 ELSI Friday Forum: Enhancing Access for Historically Marginalized Populations using the Translational Genomics Pipeline
In an era where genomic medicine promises to transform healthcare with cutting-edge treatments and personalized care, it is crucial to ensure these advancements are accessible to all, particularly…- Genomic medicine
- marginalized population
- access disparities