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Grant Abstract
Data-Driven Family Histories: Precision Medicine Across Generations
Family history is an essential predictor of disease risk, yet it is often incomplete, inaccurate, and underutilized in today's clinical settings. With the increasingly widespread adoption of…- Adoption
- Asthma
- base
- Bayesian Modeling
- Cardiovascular Diseases
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Publication
Managing genetic information sharing at family and population level
European Journal of Human Genetics -
Grant Abstract
Human Geneticists' Practices Preferences and Beliefs about Biobanks and Large Cohort Studies
Biobanks that collect and store participants' clinical and genetic information have become important tools in genomic research, disseminating data to a large number of investigators conducting…- American
- Area
- Attitude
- Authorization documentation
- base
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Grant Abstract
A Sociotechnical Approach to Improving Security and Privacy in the Genomic Data Ecosystem
PROJECT SUMMARY/ABSTRACT The dream of open science for genomics is hindered by concerns about genomic data re-identification and the resulting restrictive data access protocols. The long-term goal is…- Adopted
- Adoption
- Algorithms
- Attitude
- Belief
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Grant Abstract
Web-Based IRB Data Management and Archiving System
Funds are requested to license and adapt the Baylor Research and Assurances Information Network (BRAIN) for use at the University of Maryland Baltimore. BRAIN is an online system for creating,…- Archives
- Clinical Research
- data management
- education evaluation /planning
- health science research support
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Job Posting
Research Coordinator I - ELSI
With interests in bioethics, social science, health policy, public health, epidemiology, or related field to work on an NIH-funded study examining the social, clinical, and ethical implications of…- ELSI
- Administrator
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Publication
Registered access: Authorizing data access
European Journal of Human GeneticsThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009024