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Publication
What difference can public engagement in genome editing make, and for whom?
The American Journal of Bioethics -
Publication
How can literary and film studies contribute to science Ppolicy? The case of Henrietta Lacks
Palgrave Macmillan, Cham.The Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009009 -
Publication
Genomics and health data governance in Africa: Democratize the use of big data and popularize public engagement
Hastings Center Report -
Grant Abstract
A Community-Based Approach to Overcoming Barriers to Cascade Screening for Long QT Syndrome
While the value of identifying individuals in the population who carry `actionable' variants and screening their relatives (i.e. cascade screening) is widely acknowledged, there are numerous…- actionable mutation
- Address
- Adrenergic beta-Antagonists
- American
- Amish
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Video
ELSIcon2022 Paper: Biological sample donation and informed consent for neurobiobanking: Evidence from a community survey in Ghana and Nigeria
ELSIcon2022 • Paper • June 3, 2022 Arti Singh, Michelle Nichols, Oyedunni Arulogun, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Joshua Akinyemi, Carolyn Jenkins, Kolawole Wahab,…- Live
- Paper
- Attitudes about sharing biological samples and health data
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Publication
Community crystal gazing
Nat BiotechnolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
The engagement of consumers in genetic education: Lessons learned
Martinus NijhoffDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…