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Diving Deeper into the new NIH Data Management and Sharing Policy Slide Deck
This slide deck, which covers the informed consent process, harmonization of the 2023 DMS policy with the NIH Genomic Data Sharing Policy, sharing of American Indian/ Alaska Native participant data,…- 2023 NIH Data Management and Sharing Policy
- data sharing
- National Institutes of Health (NIH)
- Genomic Data Sharing Policy
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Additional Resource
New York 2017 State Bills (New York 2017 A3005)
Establishes a Hate Crime Task Force. The task force will issue reports and publications in conjunction with the Division on Human Rights to combat discrimination based on a variety of factors,…- state bill
- bill
- bill status enacted
- New York
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New Hampshire 2018 State Bills (New Hampshire 2018 HB 1373)
Establishes and individual's property right to his or her genetic information and DNA sample, except as expressly otherwise provided in statute. Requires consent to acquire, retain, or disclose…- state bill
- bill
- bill status died
- New Hampshire
- genetic privacy
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Missouri 2020 State Bills (Missouri 2020 HB 2375)
Prohibits a person or entity from disclosing, obtaining, retaining, or using any biometric data about an individual, including DNA, with whom the person or entity is engaged in trade or commerce for…- state bill
- bill
- bill status died
- Missouri
- genetic privacy
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Mississippi 2018 State Bills (Mississippi 2018 SB 2146)
Allows parents to opt out of the collection, tracking, housing, reporting, selling, or sharing with any party outside of the local school district, of noneducational-related information on a child or…- state bill
- bill
- bill status died
- Mississippi
- genetic privacy
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Massachusetts 2017 State Bills (Massachusetts 2017 H2176)
Requires health insurance coverage of screening breast ultrasounds and breast MRI, in addition to mammograms, if the patient is at increased risk of cancer based on certain factors such as positive…- state bill
- bill
- bill status died
- Massachusetts
- health insurance coverage
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Kentucky 2020 State Bills (Kentucky 2020 HB 21)
Amends language pertaining to pre-existing condition exclusions in group health insurance. Prohibits group health benefit plan coverage from adjusting premium or contribution amounts for a group…- state bill
- bill
- bill status pending
- Kentucky
- health insurance nondiscrimination
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Additional Resource
Illinois State Statute (Illinois: 215 ILCS 97/20 and 97/25 )
A group health plan and a health insurance issuer offering group health insurance coverage may not impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis…- state statute
- insurance nondiscrimination
- Illinois
- health insurance nondiscrimination
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Additional Resource
Florida State Statute (Florida: FS §627.6561 et seq.)
An insurer that offers a group health insurance policy may not establish rules for eligibility or continued eligibility based on certain health status-related factors, including genetic information…- state statute
- statute
- Florida
- insurance nondiscrimination
- nondiscrimination
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Additional Resource
Arizona 2010 State Bills (Arizona 2010 SB 1309)
The bill establishes the right of parents to consent in writing before any record of the minor child's blood or deoxyribonucleic acid is created, stored or shared, with some exceptions such as…- bill
- parent consent
- consent writing
- Parents
- Child