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News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their… -
News
ELSI in Review • August 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2022 set explores ethical issues related to… -
Grant Abstract
SouthCentral Research Foundation NARCH
In the Southcentral Foundation Research Center for Alaska Native Health (RCANH), SCF will position itself to achieve the chief purpose of NARCH - "to reduce health disparities, enhance… -
Grant Abstract
Human Subjects Protections in Prenatal Gene Transfer Research
This project explores whether the current regulations for protecting research subjects will provide adequate protections and guidance for future research involving human prenatal gene therapy. It…- Awareness
- base
- Benefits and Risks
- Child
- design
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News
Share Your ELSI Research Tools
I write today to encourage ELSI scholars to deposit their published and unpublished research tools into the Research Tools repository on ELSIhub. Since 1990, the ELSI…- research tools
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Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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Grant Abstract
NSIGHT: Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening
The purpose of the Newborn Sequencing In Genomic medicine and public HealTh (NSIGHT) program is to explore, in a limited but deliberate manner, the implications, challenges and opportunities…- base
- Biochemical
- Biological Assay
- Blood
- Child
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Video
Population Descriptors in Genomic Research: Applying the NASEM Recommendations
This ELSI Friday Forum took place on July 14, 2023. History demonstrates that the potential for typological thinking continues to be a hazard of genetic research involving human groups. In 2022 the…- population descriptors
- NASEM
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News
The latest attack on the right to abortion: Restricted reasons
Jonathan F. Will, a professor of law at Mississippi College School of Law, identifies a new trend in abortion restrictions. Distinct from previous abortion regulations which rely on the state’s…- abortion
- Selective Abortion