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Video
ELSIcon2022 Listening Session: ELSI and the All of Us Research Program
ELSIcon2022 • Networking Session • May 31, 2022 Katherine Blizinsky, Subhashini Chandrasekharan This listening session is intended to engage ELSI researchers and stakeholders to: i)…- Live
- Networking Session
- All of Us Research Program
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News
CERA Co-Director Mildred Cho Recognized for Outstanding Mentorship with Inaugural Bernard Lo, MD Award in Bioethics
Mildred Cho, PhD, Professor of Pediatrics and Medicine at Stanford University, has been named the recipient of The Greenwall Foundation’s inaugural Bernard Lo, MD Award in Bioethics. The Lo Award…- Mildred Cho
- Bioethics Award
- Greenwall Foundation
- Mentorship
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Publication
Ethics of routine: A critical analysis of the concept of ‘routinisation’ in prenatal screening
Journal of Medical Ethics -
Publication
Should whole genome sequencing be publicly funded for everyone as a matter of healthcare justice?
Cambridge University Press -
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News
What is ELSI Research?
Thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Office…- ELSI research
- Genomics|History|NHGRI
- Scientific Advances and Accomplishments
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Grant Abstract
Engaging Tribal Participation in Research through Priority Setting and Regulation
The recruitment of American Indians and Alaska Natives (AI/AN) to participate in research is complicated by a long and troubled history between researchers and Native populations of the United States…- Alaska
- Alcohols
- American Indian and Alaska Native
- American Indians
- Area
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Grant Abstract
Challenges of Informed Consent in Return of Data from Genomic Research
Genomic data, including findings incidental to the purpose for which a study is undertaken, can contain information of use and importance to research subjects related to their health, lifestyle, and…- Access to Information
- Address
- Adverse effects
- adverse outcome
- Alzheimer's Disease
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Grant Abstract
Addressing Ethical Challenges in Networked Biorepositories
Individual institutions across the country have worked to support research in a wide variety of areas, including precision medicine research, by developing large biorepositories comprised of…- American
- Area
- Authorization documentation
- biobank
- Biological