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Publication
A world of difference: The fundamental opposition between transhumanist “welfarism” and disability advocacy
BioethicsLevin critiques the "welfarist account" of disability, which issues a moral mandate to prospective parents to maximize the capacities (e.g., cognitive ability) of their future children through… -
Publication
Eugenic euthanasia in early twentieth-century America and medically assisted suicide today: Differences and similarities
University of Michigan PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Debates on human experimentation in Weimar and early Nazi Germany as reflected in the journal "Ethik" (1922-1938) and its context
Franz Steiner VerlagDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Medical research, morality, and history: The German journal Ethik and the limits of human experimentation
Indiana University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSI Friday Forum: Structural Racism and Genomics in the Time of COVID
The 30th anniversary of the Human Genome Project comes at a moment of unprecedented international crisis. The coronavirus now accounts for over one million deaths worldwide and has ravaged…- structural racism
- ELSI Genomics
- Covid-19
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Grant Abstract
The Effect of Electronic Informed Consent Information (EICI) on Residual Newborn Specimen Research
Obtaining adequate informed consent from potential research participants is a significant challenge for biobank-dependent research. To maintain public trust and support, it is important to establish…- Attitude
- Authorization documentation
- Award
- base
- biobank
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Publication
The relationship between eugenics and the so-called "euthanasia action" in Nazi Germany: A eugenically motivated peace policy and the killing of the mentally handicapped during the second World War
OxfordDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Human Genome Research in an Interdependent World
While many of the ethical, social, and legal issues which human genome research create can and should be debated and resolved within the borders of particular countries and regions, there are a…- Ethics
- Genome
- health related legal
- health science research analysis /evaluation
- international cooperation
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News
ELSI Abroad: Spotlight on Australia
Across the globe, ELSI studies continue to respond to the undeniable impacts of genetics and genomics on society and address both persistant and emerging issues. We hope that a global perspective on… -
Research Tool
Codebook: Willingness to Pay (WTP)
Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings…