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ELSIcon2022 Paper: Interrogating the Value of Return: Stakeholders’ Perspectives on Return of Results in Biomedical Research
ELSIcon2022 • Paper • June 1, 2022 Caitlin McMahon, Nicole Foti, Mel Jeske, William Britton, Janet Shim, and Sandra Soo-Jin Lee on behalf of Ethics of Inclusion Study Team Over the last decade…- Live
- Paper
- Return of Results
- precision medicine
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Grant Abstract
Return of Results from Psychiatric Genomics Research: Attitudes and Barriers
This project employs a multi-method, transdisciplinary approach that combines ethnographic participant- observation, interview research methods, ethical, legal, and public policy analyses. The two…- Attitude
- authority
- Bipolar Disorder
- Caring
- Case Study
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Publication
Balancing the rights of the pre-symptomatic child to be found with the risk of harm to others from the screening process
European Journal of Human Genetics -
Publication
When less is more: Lessons for expanded carrier screening from newborn sequencing research
The American Journal of Bioethics -
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Publication
Forms of intrusion: Comparing resistance to information technology and biotechnology in the USA
Cambridge University Press -
Publication
Return of individual results in epilepsy genomic research: A view from the field
Epilepsia -
News
EFF Resources - Biogenome Science at an International Scale: Navigating ELSI Challenges
Session title: Biogenome Science at an International Scale: Navigating ELSI Challenges Date and time: Friday, April 11, 2025 | 12pm ET US / 9am PT US Moderator: Patrick Keolu Fox, PhD … -
News
Scientific Dualisms
Eric Turkheimer is the Hugh Scott Hamilton Professor of Psychology at the University of Virginia. I agreed to write a response to Erik Parens’ sympathetic comment on my book, Understanding the…