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Grant Abstract
Prophylactic Mastectomy: The Patient Experience
Prophylactic mastectomy (PM) has been shown to reduce the risk of breast cancer 90% in women at high and moderate risk, but its use is limited by low acceptability. Researchers caution that this is a…- age difference
- behavioral /social science research tag
- Body Image
- breast neoplasms
- breast surgery
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Video
Genomics and Infectious Disease: Scientific and ELSI Issues of COVID
Genomics is being used in several distinct ways to understand and address the Covid-19 pandemic. Pathogen genomics investigates the genetics of the virus itself and enables identification and…- genomics and infectious disease
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News
Joy Boyer, Reflections on a Career in ELSI
An exceptional team of program directors administers the ELSI Research Program at the National Human Genome Research Institute (NHGRI), the ongoing, extramural funding program that has served as a… -
News
ELSI Abroad: Spotlight on Belgium
In this fourth installment of our series of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders, we… -
News
ELSI in Review • September 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2022 set explores parent experiences with… -
Collection
Patient Perspectives on Uncertainty in Genomic Medicine
All medical information is subject to uncertainty, but the practice of medical genetics is characterized by unique magnitudes and forms of uncertainty. In fact, for many patients, a “positive”…- variant of uncertain significance
- incidental finding
- patient experience
- clinical decision-making
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Video
The Genomics of PTSD Risk: Scientific and Ethical Perspectives
This ELSI Friday Forum took place on November 10, 2023. Post-traumatic stress disorder (PTSD) can develop following a traumatic event such as natural disaster, sexual or physical assault, or war.…- Trauma
- Polygenic risk scores
- Veterans
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Video
ELSIcon2022 Paper: The ELSI of Pandemic Biobanking
ELSIcon2022 • Paper • May 27, 2022 Sara Watson, Karen Meagher The objective of the Pandemic Research: Optimizing Technology and Ethics for Coronavirus Teams Implementing Novel Genetics (PROTECTING…- Attitudes about sharing biological samples and health data
- Biosafety
- Environment
- Paper
- Pre-Recorded
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Research Tool
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study ProtocolThe Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients with… -
Research Tool
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study Protocol
The Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients with…