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Video
ELSIcon2022 Paper: An ELSI-informed strategy to use DNA data for humanitarian family reunifications
ELSIcon2022 • Paper • May 31, 2022 Sara H Katsanis, Diana Madden Family separation—whether caused by armed conflict, repressive regimes, disasters, or immigration policies—is traumatic for…- Live
- Paper
- Data and data stewardship
- identity
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Video
ELSIcon2022 Paper: Interrogating the Value of Return: Stakeholders’ Perspectives on Return of Results in Biomedical Research
ELSIcon2022 • Paper • June 1, 2022 Caitlin McMahon, Nicole Foti, Mel Jeske, William Britton, Janet Shim, and Sandra Soo-Jin Lee on behalf of Ethics of Inclusion Study Team Over the last decade…- Live
- Paper
- Return of Results
- precision medicine
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Publication
Half a century later and we're back where we started: How the problem of locality turned in to the problem of portability
Studies in History and Philosophy of Science Part A -
Publication
Public attitudes toward fetal diagnosis and the termination of life
Social Indicators Research -
Publication
Published prior to 2011; reference list suggests ELSI folks were anticipating the development of this tech; This is from a special issue on this topic--there may be other relevant articles.
Seminars in Fetal and Neonatal Medicine -
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Publication
Impact of false-positive newborn metabolic screening results on early health care utilization
Genetics in Medicine -
News
EFF Resources - Biogenome Science at an International Scale: Navigating ELSI Challenges
Session title: Biogenome Science at an International Scale: Navigating ELSI Challenges Date and time: Friday, April 11, 2025 | 12pm ET US / 9am PT US Moderator: Patrick Keolu Fox, PhD … -
News
Scientific Dualisms
Eric Turkheimer is the Hugh Scott Hamilton Professor of Psychology at the University of Virginia. I agreed to write a response to Erik Parens’ sympathetic comment on my book, Understanding the…