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Publication
Examining the communication work of women who have tested BRCA-positive: “I feel this responsibility to let people know”
Journal of Genetic Counseling -
Publication
Examining the communication work of women who have tested BRCA-positive: "I feel this responsibility to let people know"
Journal of Genetic Counseling -
Video
ELSIcon2024: Artificial intelligence for precision medicine: How close to ‘personalized’ can we really get?
ELSIcon2024 • Panel • June 11, 2024 Authors: Corresponding Author: Carole Federico, MSc, PhD (she/her/hers) – Stanford University Panelist: Kristin Kostick-Quenet – Baylor College…- ELSIcon2024
- 6th ELSI Congress
- AI and machine learning
- precision medicine
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Grant Abstract
Genome Mapping: Implications for Health and Life Insurance
This project will examine the moral basis of, and legal and policy framework for, health and life insurance in light of the increase that the HGP is expected to generate in genetic screening capacity…- Ethics
- genetic mapping
- Genetics
- handbook
- health economics
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Publication
Beyond Moore: Issues of law and policy impacting human cell and genetic research in the age of biotechnology
Journal of Legal MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Gene patent policy: Does issuing gene patents accord with the purposes of the U.S. patent system?
Willamette Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Prenatal screening policy in international perspective: Lessons from Israel, Cyprus, Taiwan, China, and Singapore
Yale Journal of Health Policy, Law, and EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
EFF Resources - Building Infrastructures to Enhance Community Engagement Work
Session Title: Building Infrastructures to Enhance Community Engagement Work Date and time: Friday, February 14, 2025 | 12pm ET US / 9am PT US Moderator: Heini Natri, PhD Presenters: Ishita Das… -
Publication
Ethical aspects of hemophilia gene therapy: A qualitative interview study with stakeholders
Research Practice in Thrombosis and Haemostasis