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Publication
Ethical goals of community consultation in research
American Journal of Public HealthDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
New York 2017 State Bills (New York 2017 A3008)
In introduced version of the bill, a Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must…- state bill
- bill
- bill status enacted
- New York
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Additional Resource
New Hampshire 2014 State Bills (New Hampshire 2014 HB 1262)
This bill restricts the collection, storage, and sharing of student assessment data by the United States Department of Education and the New Hampshire department of education. Student assessment data…- state bill
- bill
- bill status died
- New Hampshire
- genetic privacy
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Additional Resource
Missouri 2020 State Bills (Missouri 2020 HB 1616 )
Prohibits a health carrier offering group health insurance coverage in connection with a group health plan from adjusting premium or contribution amounts for the group covered under such plan on the…- state bill
- bill
- bill status died
- Missouri
- health insurance nondiscrimination
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Additional Resource
Minnesota 2012 State Bills (Minnesota 2012 HF 2967)
During the period in which residual newborn screening specimens is retained, the health department may use blood samples and test results for newborn screening program operations. Newborn screening…- state bill
- bill
- bill status enacted
- Minnesota
- Newborn screening
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Additional Resource
Iowa 2019 State Bills (Iowa 2019 HF 96)
Iowa residents are eligible and entitled to enroll as a member in and receive benefits for health care services covered by the healthy Iowa program. A participating health care provider or…- state bill
- bill
- bill status pending
- Iowa
- health insurance nondiscrimination
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Additional Resource
Florida State Statute (Florida: FS §641.31071 et seq.)
Health care service programs may not treat genetic information as a preexisting condition in the absence of a diagnosis. A health maintenance organization that offers group health insurance coverage…- state statute
- statute
- Florida
- health insurance nondiscrimination
- nondiscrimination
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Additional Resource
Georgia 2014 State Bills (Georgia 2014 SB 167)
Prohibits the collection of student or family information by any state agency, local school system or educational institution, including biometric data (defined to include DNA sequence and newborn…- state bill
- bill
- Georgia
- educational institution
- biometric data
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Additional Resource
California 2010 State Bills (California 2010 SB 1187)
This bill amends existing law on the protection of human subjects, which provides an exemption until January 1, 2011 for any medical experimental treatment that benefits a patient subject to a life-…- state bill
- bill
- medical experimental treatment
- human subjects protection
- California
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Additional Resource
Center for the Ethics of Indigenous Genomic Research (CEIGR)
Paul Spicer is Principal Investigator of the Center for the Ethics of Indigenous Genomic Research (CEIGR). CEIGR examines how genomic information used in medical care may impact American Indian and…- CEER
- Alaska Native
- American Indian
- Indigenous
- culture