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News
All of Us Research Program Releases Tribal Consultation Final Report
NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities PRESS RELEASE…- Tribal Sovereignty
- indigenous community
- Data Governance
- Alaska Native/American Indian Health Research
- Best practices for clinical and research ethics consultation
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Publication
Human genome research and the public interest: Progress notes from an American science policy experiment
American Journal of Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Missouri State Statute (Missouri: MRS §§375.1300 and 375.1309)
This section of the law is applicable to all insurance companies. A person who creates, stores, receives or furnishes genetic information must hold such information as confidential medical records…- state statute
- Missouri
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Video
ELSIcon2022 Paper: Biological sample donation and informed consent for neurobiobanking: Evidence from a community survey in Ghana and Nigeria
ELSIcon2022 • Paper • June 3, 2022 Arti Singh, Michelle Nichols, Oyedunni Arulogun, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Joshua Akinyemi, Carolyn Jenkins, Kolawole Wahab,…- Live
- Paper
- Attitudes about sharing biological samples and health data
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Publication
A modern dilemma: How experts grapple with ambiguous genetic test results
Moral Decision Making -
Publication
Rewriting the "points to consider": The ethical impact of guidance document language
Hum Gene Ther -
Publication
Informed consent for biobanking: Consensus-based guidelines for adequate comprehension
Genetics in medicine -
Publication
A decade of public engagement regarding human germline gene editing: A systematic scoping review
European Journal of Human Genetics -
Publication
Roles of genetics and blood type in clinical responses to COVID-19: Ethical and policy concern
Journal of Medical Ethics