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  • Additional Resource

    New York 2019 State Bills (New York 2019 A8169)

    Requires every personal information recipient to protect the security and integrity of all personal information in their custody from unauthorized access or unauthorized use. Places strict liability…
  • Video

    ELSIcon2022 Paper: Sharing Qualitative Research Data: Addressing the Ethical and Logistical Challenges

    ELSIcon2022 • Paper • June 1, 2022 James DuBois, Jessica Mozersky Qualitative data sharing (QDS) promises several benefits: enabling secondary analyses to extend project findings at low cost…
  • SNAPSHOT

    Direct-To-Consumer Testing in the Genomic Age

    Technological developments are making it possible to read a person’s entire genetic code, or genome, more rapidly and at a lower cost than ever before. Personal genome sequencing is allowing…
  • Additional Resource

    Oklahoma State Statute (Oklahoma: OS §25-2001)

    Creates the Parents' Bill of Rights, including the right to consent in writing before any record of a minor childs blood or DNA is created, stored or shared, except as required by Sections 1-…
  • Additional Resource

    Nebraska State Statute (Nebraska: NRS §44-787)

    A health carrier that decides to discontinue offering a particular type of individual policy or contract in the state and offer another option of coverage must act uniformly without regard to health…
  • Additional Resource

    Maryland 2020 State Bills (Maryland 2020 HB 1560)

    Prohibits the Washington Suburban Sanitary Commission from discriminating against a person on the basis of genetic information. Requires that contracts entered into by the Commission include a…
  • Additional Resource

    Pennsylvania 2009 State Bills (Pennsylvania 2009 HB 828)

    This bill adds genetic information to the Pennsylvania Human Relations Act. The bill prohibits discrimination because of genetic information by employers, employment agencies and labor organizations…
  • Additional Resource

    New York State Statute (New York: NYCL (ISC) §§3221, 3232, 4305, and 4318)

    Insurers or corporations delivering group or blanket health policies that provide hospital, surgical or medical expense coverage may not establish rules for eligibility or continued eligibility based…
  • Additional Resource

    New Mexico 2019 State Bills (New Mexico 2019 HB 436)

    Aligns health insurance law with federal law. Prohibits a group health benefits plan or a health insurance issuer that offers group health insurance coverage in connection with a group health…
  • Additional Resource

    New Hampshire 2019 State Bills (New Hampshire 2019 SB 262)

    The informational content, including DNA/RNA and genetic sequences, contained in or on abandoned personal material is the property of the individual to whom it pertains regardless of its abandonment…