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    Mississippi 2014 State Bills (Mississippi 2014 HB 172)

    Makes it unlawful for any employer or insurer to use the results of DNA testing against a patient or against the patient's consanguineous family members for any discriminatory purpose. Any…
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    Maryland 2020 State Bills (Maryland 2020 SB 274)

    Amends the definition of biometric information under the Maryland Data Privacy act. The definition of biometric information referring to a genetic print is stricken. The revised definition of…
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    Maryland 2020 State Bills (Maryland 2020 HB 340)

    Amends the definition of biometric information under the Maryland Data Privacy act. The definition of biometric information referring to a genetic print is stricken. The revised definition of…
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    Maryland 2020 State Bills (Maryland 2020 SB 588)

    Requires the University of Maryland to develop and adopt an information security and risk management program for the protection of personally identifiable information, including biometric information…
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    Hawaii 2017 State Bills (Hawaii 2017 HB 1573)

    Requires all individual accident and health or sickness insurance policies, all individual and group hospital and medical service corporation contracts, and all group or blanket disability policies…
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    Delaware 2015 State Bills (Delaware 2015 SB 79)

    Requires the Department of Education to promulgate rules and regulations relating to the privacy and protection of student data, including DNA or other genetic material. Senate Substitute Version…
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    Arizona 2008 State Bills (Arizona 2008 SB 2658)

    This bill amends existing law that prohibits health benefit plans from terminating coverage based on a health status-related factor, including genetic information, by adding a group disability policy…
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    The Failed Protection of Proposed Changes to HIPAA

    ELSIcon2024 • Paper • June 12, 2024  Authors: Speaker: Ellen Wright Clayton, JD, MD (she/her/hers) - Vanderbilt University In the aftermath of Dobbs</em>, many states have…
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    ELSIcon2024: Genomics Through the Eyes of Others

    ELSIcon2024 • Panel • June 10, 2024  Authors: Corresponding Author: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University Panelist: Zhijun Yin, PhD – Vanderbilt…
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    ELSIcon2024 Plenary: Indigenous Data Sovereignty: Finding Pathways for Equitable Benefit Sharing from Genomic Science

    ELSIcon2024 • Plenary • June 10, 2024  Authors: Maui Hudson - University of Waikato, Te Pua Wananga ki te Ao (New Zealand) Indigenous Data Sovereignty (IDS) represents a vital…