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Video
ELSIcon2022 Paper: Reporting “Clinical Utility” in NICU Sequencing Studies: Systematic Review and Call for Rethinking
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller, Chris Feudtner, Katharine Callahan Use of exome and genome sequencing are expanding in the neonatal intensive care unit with the goals of…- Language and categorization
- precision medicine
- Paper
- Pre-Recorded
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Additional Resource
Connecticut State Statute (Connecticut: CGA 38a §999)
An insurance institution, agent or insurance support organization that collects, uses or discloses medical record information must have written policies, standards and procedures for the management,…- state statute
- statute
- Connecticut
- unauthorized disclosure
- genetic testing
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Publication
The data protection directive and medical research across Europe, edited by D. Beyleveld, D. Townend, S. Rouillé-Mirza, and J. Wright
European Journal of Health LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Social and ethical implications of integrating precision medicine into healthcare
Springer, Cham -
Grant Abstract
Rational Integration of clinical SEquencing (RISE)
The advent of clinical genome sequencing to identify patients at risk for serious diseases and to tailor treatments promises to greatly improve health outcomes and provide a foundation for the…- Adopted
- Adoption
- Adult
- Area
- base
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Publication
From biocolonialism to emancipation: Considerations on ethical and culturally respectful omics research with indigenous Australians
Medicine, Health Care and Philosophy -
Grant Abstract
Prenatal Preparation: Actions and Results
PROJECT NARRATIVE Preparation is often cited as a reason for offering and for accepting prenatal genetic screening and diagnosis. However, this term has no clear definition, and thus it is impossible…- Advocacy
- Advocate
- Bioethics Consultants
- Child
- Clinical
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Publication
Dollywood is not just a theme park in Tennessee anymore: Unwarranted prohibitory human cloning legislation and policy guidelines for a regulatory approach to cloning
John Marshall Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical issues in glaucoma genomic research: Perspectives and preferences of potential research participants in Enugu, Southeast Nigeria
Journal of Empirical Research on Human Research Ethics