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Publication
Alaska Native genomic research: Perspectives from Alaska Native leaders, federal staff, and biomedical researchers
Genetics in Medicine -
Grant Abstract
GUIDE: Genomic Uses in Infectious Diseases and Epidemics
Genomic information offers the opportunity for "personalized prevention" in both clinical practice and public health settings. To date, such efforts have focused primarily on chronic…- Acute
- Address
- Adverse effects
- Attention
- Behavioral
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Video
ELSIcon2022 Paper: The Sangre Por Salud Community Advisory Board: Enhancing Genomic Medicine Research within a Latino-serving Federally Qualified Health Center.
ELSIcon2022 • Paper • June 2, 2022 Valentina Hernandez, Davinder Singh, Iftikhar Kullo, Elena De Filippis, Karen Meagher, Sara Watson, Richard Sharp, Gabriel Shaibi, Crystal Gonzalez…- Live
- Paper
- Community oversight of research
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Video
ELSIcon2022 Paper: Consumers’ Perspectives Following Direct-to-Consumer Genetic Testing for Cancer Risk
ELSIcon2022 • Paper • June 3, 2022 Madison Kilbride, Brigitte Cronier, Lisa Kessler, Angela Bradbury Once limited to the clinical setting, genetic testing for cancer susceptibility is now widely…- Live
- Paper
- Genetic testing and screening
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Publication
FORESEE: Fully Outsourced secuRe gEnome Study basEd on homomorphic Encryption
BMC Med Inform Decis Mak -
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News
ELSIcon2020 ELSIconversations
ELSIcon2020 ELSIconversations focused on presentations that were originally accepted for the canceled 2020 ELSI Congress. The 21 participants recorded 15-minute presentations of their… -
Publication
Professionally responsible disclosure of genomic sequencing results in pediatric practice
PediatricsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG007307 -
Publication
Biobank participants’ attitudes toward requiring understanding for biobank consent
Ethics & Human Research