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Video
Addressing Racism in Medical Research and Publishing
A Discussion for Journalists • November 30, 2021 Racism and unconscious bias persist in medical research. Given that journalists who write, or aspire to write, about medicine look at journals for…- racism in medicine. medical research, and publishing
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News
The Forefront of Genomics: ELSI and NHGRI’s 2030 Strategic Vision
After two years of planning, the NHGRI released its 2030 “Strategic vision for improving human health at The Forefront of Genomics.” published in Nature on October 28, 2020. Acknowledging the…- National Human Genome Research Institute
- NHGRI 2030 Strategic Vision
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Publication
Challenges of integrating APOL1 genetic test results into the electronic health record
Applied Clinical Informatics -
News
A Glimpse into My ELSI Journey
In this Trainee Spotlight article, Sheethal Jose, a doctoral student at Johns Hopkins Bloomberg School of Public Health and the Berman Institute of Bioethics shares with us her research… -
Publication
Proposed regulations for research with biospecimens: Responses from stakeholders at CTSA Consortium Institution
American Journal of Medical Genetics Part A -
Grant Abstract
Concepts of Nature, Biotechnology, and the Human Genome
The proposed research seeks to analyze arguments in the literature of philosophy, theology and public policy that take the genome in its integrity, contingency, or historical authenticity to be what…- Belief
- biotechnology
- Books
- concept
- culture
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Collection
Human Gene Editing and the Ethics of Enhancement
Over the past decade, a new generation of precise and efficient gene editing techniques has brought new urgency and attention to the discussion of the ethics of human enhancement. In 2015, gene…- Genetic Enhancement
- human genome editing governance
- Eugenics
- Health Equity
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Publication
Outcomes of support groups for carriers of BRCA 1/2 pathogenic variants and their relatives: A systematic review
European Journal of Human Genetics