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Video
ELSIcon2024: Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Hannah V. Carpenter, LLB, MA (she/her/hers) – The University of Texas Medical Branch The medical model of disability which…- ELSIcon2024
- 6th ELSI Congress
- disability
- Law, regulation, and governance
- reproductive genetics
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Video
ELSIcon2024: Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestra
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan Genetic researchers must have access to databases…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- equity and justice in genetics
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Video
ELSIcon2024: Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Natalie Lira Panelist: Jim Tabery, PhD – University of Utah Panelist: Marie Kaniecki, MPH (she/her/hers) –…- ELSIcon2024
- 6th ELSI Congress
- disability
- equity and justice in genetics
- reproductive genetics
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Additional Resource
Oregon 2019 State Bills (Oregon 2019 SB 770)
Requires The Task Force on Universal Health Care to develop recommendations to the Legislative Assembly for the Health Care for All Oregon Plan. Recommendations must consider certain values,…- state bill
- bill
- bill status enacted
- Oregon
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Additional Resource
New Jersey 2019 State Bills (New Jersey 2019 A5510)
Expands the state law on discrimination by prohibiting any entity that operates a health program or activity from: 1. Excluding participation in, deny the benefits of, or otherwise discriminate under…- state bill
- bill
- bill status died
- New Jersey
- genetic privacy
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Additional Resource
New Jersey 2019 State Bills (New Jersey 2019 S3813)
Expands the state law on discrimination by prohibiting any entity that operates a health program or activity from: 1. Excluding participation in, deny the benefits of, or otherwise discriminate under…- state bill
- bill
- bill status died
- New Jersey
- health insurance nondiscrimination
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Grant Abstract
Ethical, Legal, Social and Governance Issues in Non-Traditional Genetics and Genomics
The project is relevant to public health because it will explore the risks and benefits of nontraditional biological experimentation, which is currently conducted largely beyond the reach of external…- agriculture
- Animals
- Archaea
- Attention
- Bacteria
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Publication
Overseeing innovative therapy without mistaking it for research: A function-based model based on old truths, new capacities, and lessons from stem cells
The Journal of law, medicine & ethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
California 2020 State Bills (California 2020 AB 2222)
Requires a genealogy company, defined as a person that is not subject to HIPAA and obtains the DNA of a person through submission of a saliva sample or other methods, to display a notice in all…- state bill
- bill
- California
- genealogy
- HIPAA
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Additional Resource
California State Statute (California: Cal. Ins. Code § 10950 et seq. and Health and Safety Code § 1399.8)
The statutes require carriers and health care service plans offering plan contracts in the individual market, other than individual grandfathered plan coverage, to offer to the responsible party for…- state statute
- statute
- California
- health care service plan
- child coverage