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Video
Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Gail E. Henderson, PhD (she/her/hers) - University of North Carolina, Chapel Hill In 2018, the scientific community was…- ELSIcon2024
- 6th ELSI Congress
- Gene therapies and gene editing
- Law, regulation, and governance
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Video
Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Benjamin Wilfond, MD (he/him/his) - Seattle Children's Research Institute Panelist: Jennifer Castillo, JD - Trisomy…- ELSIcon2024
- 6th ELSI Congress
- disability
- equity and justice in genetics
- Patient-provider communication
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Video
Cross-Disciplinary Research and Public Engagement on Eugenic Sterilization: Mixed Methods, Data Visualization, and Cross-State Comparisons
ELSIcon2024 • Panel • June 12, 2024 Authors: Moderator: Nicole Novak, PhD, MSc (she/her/hers) - University of Iowa Panelist: Heather Dron, PhD, MPH (she/her/hers) - University of…- ELSIcon2024
- 6th ELSI Congress
- disability
- Consent
- Use of race, ethnicity, and ancestry categories
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Video
ELSIcon2024: Identifying and Dismantling Systemic Ableism in Prenatal Screening
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Stephanie Meredith, MA, DrPH (she/her/hers) - University of Kentucky Our recent paper about the impact of implicit and…- ELSIcon2024
- 6th ELSI Congress
- Clinical and genetic testing
- disability
- equity and justice in genetics
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Video
ELSIcon2024: Legal Protections Against Genetic Discrimination: Awareness Among Adults and Adolescents with Psychiatric Conditions and Caregivers
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University Advancements in genetic research have provided insights into…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Consent
- Law, regulation, and governance
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Video
ELSIcon2024: Global Perspectives on Implementing Clinical Genomic Sequencing Equitably, Effectively and Efficiently
ELSIcon2024 • Panel • June 11, 2024 Authors: Corresponding Author: Deborah A. Marshall, PhD (she/her/hers) – The University of Calgary (Canada) Panelist: Kathryn Phillips, PhD (she…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- global health
- precision medicine
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Video
ELSIcon2024: Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City Social epigenomics research (SER) linking…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- equity and justice in genetics
- precision medicine
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Video
ELSIcon2024: Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center In New Zealand, like many countries…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Consent
- equity and justice in genetics
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Publication
Legitimate requests and indecent proposals: Matters of justice in the ethical assessment of phase I trials involving competent patients
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Oklahoma State Statute (Oklahoma: OS §36-3614.2)
For purposes of distinguishing between or discriminating against or restricting any right or benefit otherwise due or available to an employee or prospective employee other than in connection with…- state statute
- Oklahoma
- employment nondiscrimination