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Grant Abstract
Faith Forum on Genetics: An ELSI Educational Intervention for Religious Communities
This community education intervention is a collaborative initiative between Pacific University, the Pacific Institute for Ethics and Social Policy, and Ecumenical Ministries of Oregon. it is a pilot…- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- educational resource design /development
- Ethics
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Publication
“It seems like COVID-19 now is the only disease present on Earth”: Living with a rare or undiagnosed disease during the COVID-19 pandemic
Genetics in MedicineHalley and colleagues call for urgent action and attention to the serious challenges posed by the COVID-19 pandemic for people with rare or undiagnosed diseases. -
Publication
Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
Genetics in Medicine -
Publication
Living laboratory: Whole-genome sequencing as a learning healthcare enterprise
Clin GenetDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Rare disease 101: An online resource teaching on over 7000 rare diseases in one short course
Orphanet Journal of Rare Diseases -
Publication
Family health beliefs and cascade genetic testing in Asian families with hereditary cancer risk: “Okay, now what?”
Journal of Genetic Counseling -
Publication
Clinical trials or FDA-approved therapies? The ethics of sickle cell gene therapy access
American Journal of Bioethics