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2841 - 2850 of 7274 Topics
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Publication
Allocation of gene therapy for rare diseases: FDA approved therapy or clinical trial for patients with sickle cell disease?
The American Journal of Bioethics -
Publication
Valuing health care: Improving productivity and quality
Ewing Marion Kauffman FoundationDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Analysis of public perceptions on the use of artificial intelligence in genomic medicine
Human Genomics -
Collection
How Literature and Film Shape and Reflect Public Attitudes toward Genetics
Powerful works of art enrich our understanding of the issues that matter most in our lives—not least in controversial areas of the biosciences. By exploring the dense cultural networks that shape…- Narratives
- Film
- Literature
- public attitudes
- race and genetics
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Publication
UK centres are not following the Royal College of Pathologists' recommendations for storage of Guthrie cards: A national policy is needed
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Biobank participants' preferences for disclosure of genetic research results: Perspectives from the OurGenes, OurHealth, OurCommunity project
Mayo Clin ProcClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): AR052403, AR047782, AR049880, U01HG006500 -
Grant Abstract
Engaging Tribal Participation in Research through Priority Setting and Regulation
The recruitment of American Indians and Alaska Natives (AI/AN) to participate in research is complicated by a long and troubled history between researchers and Native populations of the United States…- Alaska
- Alcohols
- American Indian and Alaska Native
- American Indians
- Area
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Research Tool
CSER Phase 2 Patient-Initiated Actions Attributable to Genomic Testing (PIA) Survey
The Patient-Initiated Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, asks adult patients to report whether they… -
News
CERA Partnership with the Broad Institute of MIT and Harvard to Expand Ethics and Equity Resources for Genetics and Genomics
The Center for ELSI Resources and Analysis (CERA)—a collaboration and dissemination hub for the field of study focused on the ethical, legal, and social implications (ELSI) of genetics and genomics,…