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Louisiana 2020 State Bills (Louisiana 2020 HB 408)
Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for a medically necessary drug on the basis that the drug is not…- state bill
- bill
- Louisiana
- health insurance coverage
- Cancer
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Additional Resource
California 2020 State Bills (California 2020 AB 3215)
Establishes the Commission on the State of Hate. Requires the commission to advise the Legislature, the Governor, and state agencies on, among other things, policy recommendations to promote…- state bill
- bill
- California
- diversity
- genetic discrimination
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Video
From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening
ELSIcon2024 • Panel • June 12, 2024 Authors: Moderator: Emily Bonkowski, ScM, CGC (she/her/hers) - St. Jude Children's Research Hospital Panelist: Leila Jamal, ScM, PhD, LGC (she/her/…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Patient-provider communication
- Public Health
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Video
"I have data, I have science behind my treatment plan": A qualitative study of clinician and patient views and experiences with pharmacogenomic testing for depression
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Katherine Hendy, PhD (she/her/hers) - University of Michigan Background: Pharmacogenomic (PGx) testing for depression…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Patient-provider communication
- precision medicine
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Video
Psychiatric Polygenic Risk Scores in Reproductive Decision-Making: Perspectives from Adults with Psychiatric Conditions
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Ana Lucia Battaglino, MA (she/her/hers) - Harvard University Psychiatric polygenic risk scores (PRS) can provide relative…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Polygenic risk scores
- reproductive genetics
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Video
ELSIcon2024: The Ethics of “Traceback Testing”: Perspectives of First-Degree Relatives of Deceased Individuals on Privacy, Consent and Benefit.
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University Germline mutations in BRCA1/2</em> genes are…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Consent
- Gene therapies and gene editing
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Video
ELSIcon2024: Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making
ELSIcon2024 • Panel • June 11, 2024 Authors: Corresponding Author: Hadley Smith, PhD, MPSA – Harvard University Panelist: Jeroen Jansen, PhD (he/him/his) – University of California…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Methodology and study design
- Public Health
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Video
ELSIcon2024: Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona Scientific studies with Indigenous Peoples have sometimes been termed…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- Indigenous communities collaboration
- Law, regulation, and governance
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Video
Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Julia Brown, PhD (she/her/hers) - University of California, San Francisco Panelist: Marsha Michie, PhD (she/her/hers…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Gene therapies and gene editing
- reproductive genetics
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Video
Patient perceptions of duties and responsibilities in variant reclassification and recontact process
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Sukh Makhnoon, PhD, MS - University of Texas Southwestern Medical Center Reclassification of variants of uncertain…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- precision medicine
- Return of results and incidental findings