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Publication
Bioethical theory and practice in genetic screening for type 1 diabetes
Medicine, Health Care and Philosophy: A European JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Oklahoma 2013 State Bills (Oklahoma 2013 HB 1384)
This bill creates the Parents' Bill of Rights. Rights under the bill include the right to consent in writing before any record of a minor child's blood or DNA is created, stored or shared,…- state bill
- bill
- bill status enacted
- Oklahoma
- genetic privacy
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Additional Resource
Michigan State Statute (Michigan: MCL § 333.5431)
The statute requires the health department to develop a schedule for the retention and disposal of blood specimens. The schedule must allow for the blood specimens to be used for medical research…- state statute
- Michigan
- blood specimens
- medical research
- protection of human subjects
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Video
The Legal Weaponization of Racialized DNA
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Jonathan Kahn, JD, PhD (he/him/him) - Northeastern University A White man in Washington State tries to use the results of his…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Law, regulation, and governance
- Use of race, ethnicity, and ancestry categories
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Video
Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Madison R. Hickingbotham, MS - Harvard University Researchers worldwide are exploring population-based newborn genomic…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Methodology and study design
- Perinatal and public health genetic screening
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Video
ELSIcon2024: Anticipating social and interpersonal influence of polygenic scores in future clinical settings
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Susan Persky, PhD (she/her/hers) – National Human Genome Research Institute, National Institutes of Health Clinical…- ELSIcon2024
- 6th ELSI Congress
- Patient-provider communication
- Polygenic risk scores
- Use of race, ethnicity, and ancestry categories
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Video
ELSIcon2024: Exploring Ethical Dialogues in genomics research: A Qualitative Analysis of the Drama of DNA Method in South Africa.
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Lebogang Montewa, MPH (she/her/hers) – University of Cape Town (South Africa) This study investigated the effectiveness of two…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- Education and public understanding of genetic science
- Return of results and incidental findings
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Publication
Orkin-Motulsky panel calls for gene therapy basic research
Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Duty to disclose what? Querying the putative obligation to return research results to participants
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Policy design for human embryo research in Canada: A history (Part 1 of 2)
Journal of Bioethical InquiryDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…