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  • Additional Resource

    Minnesota 2013 State Bills (Minnesota 2013 HF 589/SF 1017)

    This bill specifies that newborn screening activities are subject to state law on the collection, storage, use, and dissemination of genetic information. A new statute section also is created on the…
  • Additional Resource

    Maine State Statute (Maine: MRS 24A §2850 and 24A §2850-C )

    An individual, group and blanket medical insurance contract subject to chapters 33 and 35 of Title 24A (with some exceptions) may not impose pre-existing condition exclusions based on genetic…
  • Additional Resource

    Delaware State Statute (Delaware: Del. Code 19 §710 et seq.)

    Employers, employment agencies, labor organization or joint labor-management committee controlling apprenticeships or other training may not discriminate based on genetic information. These entities…
  • Additional Resource

    Delaware 2015 State Bills (Delaware 2015 SB 58)

    Prohibits utilizing newborn screening stored blood specimens or stored data without parental consent, except for population based studies in which all identifying information is removed. Blood spots…
  • Additional Resource

    California 2009 State Bills (California 2009 SB 145)

    This bill prohibits the denial of a workers' compensation claim solely because the motivation behind what caused the employee's injury or injury resulting in death was related to an…
  • Additional Resource

    California 2010 State Bills (California 2010 AB 2244)

    This bill requires carriers and health care service plans offering plan contracts in the individual market, other than individual grandfathered plan coverage, to offer to the responsible party for a…
  • Video

    Racial Politics and Health Equity in Genome-Editing Therapeutics

    ELSIcon2024 • Paper • June 12, 2024  Authors: Co-author: Santiago J. Molina, PhD (he/they) - Northwestern University Speaker: Melissa Creary, PhD, MPH This paper examines the…
  • Video

    ELSIcon2024: Racial Politics and Health Equity in Genome-Editing Therapeutics

    ELSIcon2024 • Paper • June 12, 2024  Authors: Co-author: Santiago J. Molina, PhD (he/they) - Northwestern University Speaker: Melissa Creary, PhD, MPH This paper examines the…
  • Additional Resource

    Missouri State Statute (Missouri: MRS §191.331)

    A residual newborn screening specimen is retained for five years after initial submission to the department. After five years specimens are destroyed. Unless otherwise directed, a biological specimen…
  • Publication

    Framework for the selection of subjects in human gene therapy and diagnostic trials

    Journal of Investigative Medicine
    Modell, Stephen M.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…