Image
The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
291 - 300 of 7195 Topics
-
Video
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era
This ELSI Friday Forum took place on June 9, 2023. Rapid growth in genetic understanding presents challenges for expectant parents, now complicated by the Dobbs decision’s removal of federal…- genetic privacy
- Legal
- Policy
-
Publication
Post-publication sharing of data and tools
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Addressing ELSI Issues in Unregulated Health Research Using Mobile Devices
Health research using mobile devices, such as smartphones and tablets, is becoming more common. New hardware and software can transform a mobile device into a sophisticated data collection and…- cancer care
- Categories
- Cellular Phone
- Child
- citizen science
-
Publication
Sharing human biobank samples and data in exchange for funding in South Africa in international collaborative health research - an ethicolegal analysis
South African Journal of Bioethics and Law -
Publication
Ethical and social reflections on the proposed European Health Data Space
European Journal of Human Genetics -
-
Video
ELSIcon2022 Paper: Consumer Willingness to Share Personal Digital Information for Health-Related Uses
ELSIcon2022 • Paper • June 3, 2022 Presented by: David Grande Nandita Mitra, Raghu Iyengar, Raina Merchant, David Asch, Meghana Sharma, Carolyn Cannuscio Background: Consumers routinely…- Live
- Paper
- Attitudes about sharing biological samples and health data
-
Grant Abstract
From Specimen to Biobank: Using an Organizational Perspective to Study ELSI Issue
This research project will collect and analyze qualitative and quantitative data about US biobanks, exploring how organizational strategies, features, and attributes affect both framing and response…- Administrator
- Adopted
- Adoption
- Affect
- Area
-
Publication
The next controversy in genetic testing: Clinical data as trade secrets?
Eur J Hum GenetDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Research Tool
"Seeing Your Data", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"Seeing Your Data" is a 34 second video created by the All of Us Research Program (All of Us) to provide information to American Indian and Alaska Native participants about which personal…