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291 - 300 of 2126 Topics
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Publication
Community Genetics screening in a pandemic: Solutions for pre-test education, informed consent, and specimen collection
European Journal of Human Genetics -
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Publication
Ethics, genetics and the future of our community: The results of an eighteen month community roundtable study
American Journal of Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Do genomic passports leave us more vulnerable or less vulnerable? Perspectives from an online citizen engagement
Humanities and Social Sciences CommunicationsMayeur, Mertes, and Van Hoof propose policy recommendations based on their analysis of the opinions of Belgian participants about the benefits and drawbacks of a genomic passport for all. -
Publication
Partnership with the Confederated Salish and Kootenai Tribes: Establishing an advisory committee for pharmacogenetic research
Progress in Community Health Partnerships: Research, Education, and Action -
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A framework for promoting diversity, equity, and inclusion in genetics and genomics research
JAMA Health Forum -
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Genetic testing in the Latinx community: Impact of acculturation and provider relationships
Gynecologic Oncology -
Publication
Knowledge creation practices at organizational boundaries: The role of ICT in sickle-cell care for tribal communities
Journal of Knowledge Management
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Grant Abstract
Genetic Ancestry Inference: Developing Best-Practice Guidelines
The American Society of Human Genetics (ASHG) requests financial support to partially defray speaker and participant travel expenses for an "Ancestry Inference Roundtable" to be held in May…- Advisory Committees
- Advocacy
- American
- Anthropology
- Behavioral
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Publication
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Frontiers in GeneticsCarroll and colleagues analyze the content of research governance documents from 26 U.S. tribal communities and recommend the addition of explicit requirements for benefit sharing.