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Grant Abstract
Genomics and Native Communities: Perspectives, Ethics, and Engagement
PUBLIC HEALTH RELEVANCE: This project will explore the ethical, social, and cultural issues of the American Indians in regards to genetic research. Engaging tribal leaders and relevant stakeholders…- Academia
- Adoption
- Alaska Native
- American Indians
- Anthropology
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Grant Abstract
Community-engaged Research Toward Precision Medicine with AIAN People
The overall goal of the proposed research is to advance policy approaches to support Precision Medicine research (PMR) with American Indian and Alaska Native (AIAN) people through culturally…- Alaska
- Alaska Native
- American Indians
- Area
- biomarker discovery
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Publication
Genetic research within Indigenous communities: Engagement opportunities and pathways forward
Genetics in Medicine -
Video
The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Meghan Halley, PhD, MPH - Stanford Center for Biomedical Ethics Panelist: Ryan Fischer - Foundation for Angelman…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- equity and justice in genetics
- Public Health
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Publication
Equitable community-based participatory research engagement with communities of color drives All of Us Wisconsin genomic research priorities
Journal of the American Medical Informatics Associationby Suma K Thareja, Xin Yang, Paramita Basak Upama, Aziz Abdullah, Shary Pérez Torres, Linda Jackson Cocroft, Michael Bubolz, Kari McGaughey, Xuelin Lou, Sailaja Kamaraju, Sheikh Iqbal Ahamed,… -
Publication
HGVS Nomenclature 2024: Improvements to community engagement, usability, and computability
Genome Medicine -
Publication
Inconvenient sampling: Community-engaged and restorative justice approaches to genetic counseling student research
Journal of Genetic Counseling -
Publication
Community engagement, public consultation, and informed consent in the International HapMap project
Community Genet -
Publication
Wrestling with public input on an ethical analysis of scientific research
Hastings Center ReportMartschenko and colleagues describe an initiative to engage members of the public in normative discussions about social and behavioral genomics (SBG) research, summarize the perspectives of a… -
Publication
Systematic review of community engagement approach in research: Describing partnership approaches, challenges and benefits
Journal of Public Health