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Publication
NIH recombinant DNA Advisory Committee continues to ponder adverse event associated with AAV gene therapy trial
Molecular TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical perspectives on RNA interference therapeutics
International Journal of Medical SciencesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Panel to take broad view of bioethics
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
ACCE, pharmacogenomics, and stopping clinical trials: Time to extend the CONSORT statement?
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Minnesota State Statute (Minnesota: MS §72A.139)
A health plan company in determining eligibility for coverage, establishing premiums, limiting coverage, renewing coverage, or any other underwriting decision may not (1) require or request an…- state statute
- Minnesota
- health insurance nondiscrimination
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Additional Resource
Pennsylvania 2009 State Bills (Pennsylvania 2009 HB 829)
This bill prohibits any legal entity engaged in the business of insurance subject to the Insurance Company Law of 1921 from denying, limiting, canceling, refusing to renew or varying the premiums for…- state bill
- bill
- bill status died
- Pennsylvania
- health insurance nondiscrimination
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Additional Resource
Missouri State Statute (Missouri: MRS §§375.1300 and 375.1303 )
An insurer in making any underwriting decision may not (1) require or request a person or his/her blood relative to provide genetic information or take a genetic test, (2) inquire about a genetic…- state statute
- Missouri
- health insurance nondiscrimination
- genetic privacy
- disability
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Additional Resource
Minnesota 2009 State Bills (Minnesota 2009 HF 902)
This bill creates personal property rights human biological specimens, defined as tissues, organs and body parts from which DNA may be isolated and requires written informed consent for the use of…- state bill
- bill
- bill status died
- Minnesota
- genetic privacy
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Additional Resource
Massachusetts 2011 State Bills (Massachusetts 2011 S 1080)
This bill creates the Genetic Bill of RIghts. Genetic information is declared the exclusive property of the individual from whom the information is obtained. The bill also prohibits disclosure of…- state bill
- bill
- bill status died
- Massachusetts
- health insurance nondiscrimination
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Publication
Self-critical federal science? The ethics experiment within the U.S. Human Genome Project
Social Philosophy and PolicyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…