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Publication
Health equity innovation in precision medicine: Data stewardship and agency to expand representation in clinicogenomics
Health Research Policy and Systems -
Publication
Genetics and managed care: Policy statement of the American College of Medical Genetics
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
GenePING: Secure, scalable management of personal genomic data
BMC GenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Impact of Psychiatric Genetic Data on Civil Litigation and its Relationship with Stigma
Advances in psychiatric genetics are likely to offer major diagnostic and therapeutic benefits, but also legal and social-related risks, to individuals who were diagnosed with, or have a proclivity…- Address
- Advocate
- Affect
- Area
- Attitude
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Video
1. ELSI Research Funding through NIH and NHGRI: An Introduction
Updated on 6/28/2022 | Uploaded on 11/6/2020 This is the first of a series of videos designed to provide guidance on the various steps involved in developing and submitting a grant application to…- Grantsmanship
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Publication
Creating a data resource: What will it take to build a medical information commons?
Genome Med -
Publication
Equity in genomic health policies: A review of policies in the international arena
Frontiers in Public Health -
Publication
"Equity" in genomic health policies: A review of policies in the international arena
Frontiers in Public Health -
Publication
Big health data research and group harm: The scope of IRB Review
Ethics & Human ResearchDoerr and Meeder discuss an ambiguous provision in the Common Rule that may limit IRBs from considering long-term risks, such as potential group harms associated with the outcomes of big health data… -
Publication
Australian public perspectives on genomic data governance: Responsibility, regulation, and logistical considerations
European Journal of Human Genetics