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Video
ELSIcon2024: The Impact of Patient Race and Polygenic Risk Scores on Cancer Genetic Counselors’ Risk Assessment and Management in Breast Cancer Clinical Vignettes
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Yifei Sylvia Lin, ScM, CGC – NIH/Johns Hopkins Genetic Counseling Graduate Program Background: Polygenic risk scores (PRS) are…- ELSIcon2024
- 6th ELSI Congress
- Genetic Counseling
- Polygenic risk scores
- Use of race, ethnicity, and ancestry categories
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Publication
Perceptions of pharmacogenetic exceptionalism and the implications for clinical management within an electronic health record
Clinical and Translational Science -
Publication
Shared genetic data and the rights of involved people
Law and the Human Genome ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
When should pediatric biobanks share data?
American Journal of Medical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Can open science advance health justice? Genomic research dissemination in the evolving data-sharing landscape
Hastings Center Report -
Video
ELSIcon2022 Paper: The definition and handling of genomic data in a digitalized society: A Japanese perspective
ELSIcon2022 • Paper • May 27, 2022 Jusaku Minari The development of genomic research increasingly contributes to the understanding, diagnosis, and treatment of various diseases, including…- Education and public reception of genetic science
- Paper
- Pre-Recorded
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Publication
A scoping review of considerations and practices for benefit sharing in biobanking
BMC Medical Ethics -
Publication
Lessons from HeLa cells: The ethics and policy of biospecimens
Annu Rev Genomics Hum Genet -
Publication
Information management in families who have a child with a genetic condition
J Pediatr Nurs -