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Publication
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Nature Reviews Genetics -
Publication
Security and sharing of NIPT data are the basis of ethical decision-making related to non-medical traits
The American Journal of Bioethics -
Publication
Lessons from HeLa cells: The ethics and policy of biospecimens
Annual Review of Genomics and Human Genetics -
Publication
Old and new challenges regarding comparable and viable data sharing in population-scale genomic research
European Journal of Human Genetics -
Publication
The passivists: Managing risk through institutionalized ignorance in genomic medicine
Social Science & Medicine -
Publication
The Enterprise Data Trust at Mayo Clinic: A semantically integrated warehouse of biomedical data
J Am Med Inform Assoc -
Video
ELSIcon2022 Paper: Genetic data and the collective good: participants as leaders to reconcile individual and public interest
ELSIcon2022 • Paper • June 2, 2022 Ilaria Galasso, Susi Geiger This paper problematizes the notion of collective good in the contest of medical research and juxtaposes consequentialist and…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics