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Publication
Risk management recommendations for environmental releases of gene drive modified insects
Biotechnology Advances -
Publication
International policies on sharing genomic research results with relatives: Approaches to balancing privacy with access
J Law Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1-R01-CA154517 -
Publication
Why the gene was (mis)placed at the center of American health policy
Hastings Center Report -
Research Tool
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP. -
Grant Abstract
Development of recommendations and policies for genetic variant reclassification
As genomic sequence data are being produced faster and at lower cost, the most significant challenge in clinical genetic testing today is variant classification. Currently, there are marked…- adverse outcome
- Advocate
- Affect
- Agreement
- Algorithms
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Publication
Responsible processing and sharing of genomic data: Bringing health yechnologies industries to the table
The American Journal of Bioethics -
Publication
Factors associated with willingness to share health information: Rapid review
JMIR Human Factors -
Video
ELSIcon2022 Panel: Developing an Evidence Base for Investigative Genetic Genealogy (IGG) Policy-Making
ELSIcon2022 • Panel Session 1 • May 31, 2022 Ellen Clayton, Stephanie Malia Fullerton, Amy McGuire, Natalie Ram Investigative genetic genealogy (IGG) is a novel technique for identifying…- Live
- Panel
- Emerging technologies - public opinion and policy
- Law, regulation, and governance