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Video
Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Pre-recorded Paper Rachel Bailey, ABD - University of Georgia, Graduate Student Teaching Assistant: Investigating an Ethos of Duty in Precision Medicine Research Calls…- Education
- public reception of genetic science
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Video
ELSIconversations: Utility of Population Descriptors in Clinical Genetics
SESSION 2 - May 6: Utility of Population Descriptors in Clinical Genetics Question: What is the most important information, conceptually, for clinical genetics professionals to do their…- population descriptors
- clinical genetics
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Video
ELSIconversations: Shedding Light on the Use of Population Descriptors in Clinical Genetics
SESSION 1 - April 29: Shedding Light on the Use of Population Descriptors in Clinical Genetics Question: How is information about patient race, ethnicity, and ancestry on clinical…- population descriptors
- clinical genetics
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News
Genetics and Responsibility: More Complicated Than We’d Thought
Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD In 1991, sociologist Abby Lippman proposed the geneticization thesis, i.e., that “genetic science [would]…- genetics and responsibility
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Grant Abstract
Interactive Multimedia and Biorepository Informed Consent
The long-term goal of this research is to develop multimedia technology and interactive instructional strategies to improve the effectiveness and efficiency of obtaining informed consent for human…- animation
- base
- Benefits and Risks
- biobank
- Bioethics
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Publication
2008 amendments to the National Academies' guidelines for human embryonic stem cell research
National Academies PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Science meets reality: Recruitment and retention of women in clinical studies, and the critical role of relevance: January 6- 9, 2003
National Institutes of Health, Office of Research on Women's HealthDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Designing our descendants: The promises and perils of genetic modifications
Johns Hopkins University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Human cloning: Scientific, ethical and regulatory aspects of human cloning and stem cell research
Parliament of the Commonwealth of AustraliaDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Human subjects research, ethics, and international codes on genetic research
John Wiley & SonsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…