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Promoting Safe and Effective Genetic Testing in the United States Glossary, National Human Genome Research Institute (NHGRI)
The Promoting Safe and Effective Genetic Testing in the United States Glossary, produced by the National Human Genome Research Institute (NHGRI), provides short definitions of genetics terms and…- genetic terms glossary
- glossary
- NHGRI
- NIH
- learning tool
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Additional Resource
Consensus Study Report, Contraceptive Research and Development: Looking to the Future, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1996)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on scientific prospects for new contraceptive development and private sector participation…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Role of genomic medicine and implementing equitable access for critically ill infants in neonatal intensive care units
Journal of Perinatology -
Publication
The psychological well‐being of pregnant women undergoing prenatal testing and screening: A narrative literature review
The Hastings Center Report -
Additional Resource
New York 2015 State Bills (New York 2015 A299)
The bill requires every policy of hospital, surgical or medical care or policies that provide reimbursement for laboratory tests or diagnostic X-rays must provide coverage for testing of familial…- state bill
- bill
- bill status died
- New York
- health insurance coverage
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Additional Resource
California State Statute (California: Cal. Ins. Code § 10950 et seq. and Health and Safety Code § 1399.8)
The statutes require carriers and health care service plans offering plan contracts in the individual market, other than individual grandfathered plan coverage, to offer to the responsible party for…- state statute
- statute
- California
- health care service plan
- child coverage
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Video
ELSIcon2024 Plenary: Scientific, Regulatory, and Ethical Implications of Interventional Genetics and Individualized Medicines
ELSIcon2024 • Plenary • June 12, 2024 Authors: Timothy Yu, MD, PhD - Harvard University Advances in neurogenetics reveal an increasingly visible category of unmet need: precisely…- ELSIcon2024
- 6th ELSI Congress
- precision medicine
- Clinical genetic testing
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Collection
Screening Embryos for Psychiatric Conditions: Public Perspectives, Ethical and Social Issues
The number of genomic loci identified to be associated with psychiatric disorders have substantially increased over the last decade. Alongside developments in polygenic embryo screening (PES; or PGT-…- polygenic embyro screening
- Polygenic risk scores
- Psychiatry
- Reproductive Decision Making
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Grant Abstract
Engaging' Tuscans in Italy in the Haplotype Map Project (HAPMAP)
The impetus for this proposal began with the decisions to include a Southern European population sample in the new Haplotype Map Project (HapMap Project) and to undertake this research among…- Attitude
- behavioral /social science research tag
- biotechnology
- Blood Tests
- Clinical Research