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Publication
Un/Diagnosed: Family experience of genomic diagnoses and the re-making of (rare) disease in the UK
Medical Anthropologyby Alessia Costa -
Grant Abstract
Prenatal Diagnosis and the Selection of Children
Given the current and anticipated capabilities to perform prenatal diagnosis, the medical profession, and society more broadly, must decide how these technologies should be used. Specifically, what… -
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Publication
Genetic discrimination: Introducing the Asian perspective to the debate
npj Genomic Medicine -
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Publication
Parents' views of benefits and limitations of receiving genetic diagnoses for their offspring
Child: Care, Health and Development -
Additional Resource
Delaware 2019 State Bills (Delaware 2019 SB 144)
Prohibits discrimination based upon genetic information in the issuance or renewal of disability, long-term care, and life insurance. Carries over to 2020. Bill Status: Pending- state bill
- bill
- Delaware
- Discrimination
- genetic information
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Publication
Personal identity and the moral appraisal of prenatal therapy
Springer Science+Business Media -
Video
ELSIcon2022 Panel: The Limits of Consent and Patterns of Coercion in U.S. Histories of Eugenic Sterilization
ELSIcon2022 • Panel 11 • June 1, 2022 Nicole Novak, Heather Dron, Marie Kaniecki, Levity Smith, Juan Gudino This panel showcases recent research by the Sterilization and Social Justice Lab, a…- Live
- Panel
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies