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Grant Abstract
Haplotype Mapping and U.S. Chinese Community Engagements (HAPMAP)
Some socially identifiable groups have historically perceived genetic research with considerable mistrust. For this reason, and to better understand the salience of community-based ethical, legal and…- behavioral /social science research tag
- Belief
- biotechnology
- blood chemistry
- Chinese American
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Video
ELSIcon2024: Genomics Through the Eyes of Others
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University Panelist: Zhijun Yin, PhD – Vanderbilt…- ELSIcon2024
- 6th ELSI Congress
- Humanities and the Arts
- identity
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Video
Ethical Frameworks for Research Collaboration with Indigenous Communities
Research with Alaska Native and American Indian people has a complex history. American Indian and Alaska Native peoples, are both a racial classification and less known to most Americans, a political… -
Publication
Public attitudes toward direct to consumer genetic testing
Proceedings of the American Medical Informatics Association Annual Fall SymposiumThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009018 -
Publication
Medicalizing risk: How experts and consumers manage uncertainty in genetic health testing
PLOS ONEMukherjee, Eby, Wang, and colleagues observe genomics conferences and analyze Reddit posts to understand how lay, direct-to-consumer (DTC) genetic test users and researchers conceptualize genetic… -
Grant Abstract
Overcoming Genetic Literacy Barriers Among Underserved Minorities
Advances stemming from the Human Genome Project have prompted concerns about the general public's readiness to utilize this information to make informed health decisions. As a strategy to…- Access to Information
- Address
- Adopted
- Adoption
- Advocate
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Grant Abstract
Biennial Symposium Series on Minorities and Cancer
This project provides support for the Biennial Symposium Series on Minorities and Cancer. The overall goals of the symposium series are to: -exchange the latest scientific and treatment information…- cancer prevention
- education evaluation /planning
- Ethnic group
- meeting /conference /symposium
- neoplasm /cancer diagnosis
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Publication
Informed consensus: The future of respect for persons in biomedical research
The American Journal of Bioethics -
Publication
Next generation sequencing: Forensic applications and policy considerations
WIREs Forensic Science