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Publication
Assessing the general public’s view of direct-to-consumer (DTC) genetic testing and their interpretation of DTC website disclaimer messages
European Journal of Human Genetics -
Publication
Public attitudes toward direct to consumer genetic testing
Proceedings of the American Medical Informatics Association Annual Fall SymposiumThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009018 -
Grant Abstract
Biennial Symposium Series on Minorities and Cancer
This project provides support for the Biennial Symposium Series on Minorities and Cancer. The overall goals of the symposium series are to: -exchange the latest scientific and treatment information…- cancer prevention
- education evaluation /planning
- Ethnic group
- meeting /conference /symposium
- neoplasm /cancer diagnosis
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Video
ELSIcon2024 Plenary: Indigenous Data Sovereignty: Finding Pathways for Equitable Benefit Sharing from Genomic Science
ELSIcon2024 • Plenary • June 10, 2024 Authors: Maui Hudson - University of Waikato, Te Pua Wananga ki te Ao (New Zealand) Indigenous Data Sovereignty (IDS) represents a vital…- ELSIcon2024
- 6th ELSI Congress
- Indigenous communities collaboration
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Grant Abstract
Integrating Nurse Champion Model for Group Reproductive Genetic Counseling for Sickle Cell Hemoglobinopathies into Primary Care: A Pilot Implementation Science Study
PROJECT NARRATIVE: Genetic counseling and health education are essential components of any early diagnosis program for sickle cell disease to ensure that risk results are effectively communicated by…- acceptability and feasibility
- Address
- Adopted
- Africa
- Africa South of the Sahara
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Publication
Medicalizing risk: How experts and consumers manage uncertainty in genetic health testing
PLOS ONEMukherjee, Eby, Wang, and colleagues observe genomics conferences and analyze Reddit posts to understand how lay, direct-to-consumer (DTC) genetic test users and researchers conceptualize genetic… -
Publication
The concept of Alzheimer disease in a hypercognitive society
Johns Hopkins University Press -
Publication
Informed consensus: The future of respect for persons in biomedical research
The American Journal of Bioethics -
Publication
"DNA doesn't lie:" Genetic essentialism and determinism in Law & Order: Special Victims Unit
Journal of Medical Humanities -
Publication
"Bioethics in action" and human population genetics research
Culture, Medicine and Psychiatry