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Grant Abstract
Evaluation of the Human Genome Project Educational Kit
As a part of their work on the U.S. Human Genome Project, NHGRI has produced a multimedia educational kit, The Human Genome Project: Exploring our Molecular Selves. The kit (which could only be…- Clinical Research
- community
- education evaluation /planning
- educational resource design /development
- Genome
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Grant Abstract
Penn Center for ELSI Research in Emerging Genetic Technologies in Health Care
Most, if not all, human diseases have one or more genetic factors that contribute to cause, likelihood of occurrence, severity, and response to existing or experimental treatments. There is a general…- African American
- Age
- BRCA1 gene
- BRCA2 gene
- career
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Additional Resource
North Carolina 2017 State Bills (North Carolina 2017 HB 78)
Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and…- state bill
- bill
- bill status died
- North Carolina
- employment nondiscrimination
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Additional Resource
North Carolina 2017 State Bills (North Carolina 2017 HB 82)
Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and…- state bill
- bill
- bill status died
- North Carolina
- employment nondiscrimination
-
Additional Resource
North Carolina 2017 State Bills (North Carolina 2017 HB 906)
Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and…- state bill
- bill
- bill status died
- North Carolina
- employment nondiscrimination
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Publication
Who’s on your genomics research team? Consumer experiences from Australia
Public Health Genomics -
Publication
Venezuelan kindreds reveal that genetic and environmental factors modulate Huntington's disease age of onset
Proceedings of the National Academy of Sciences of the United States of America -
Additional Resource
Infusing Ethics into the Development of Engineers: Exemplary Education Activities and Programs, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This National Academies Press publication describes 25 exemplary activities and programs that include ethics as part of their approach to developing engineering students.- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Ethics and Public Attitudes Concerning the Use of Archived Biological Samples
Most discussion of the ethical challenges raised by the growth of research biobanks relies on the assumption that the only ethically relevant interests are those that concern risks to subjects'…- Archives
- Attitude
- authority
- biobank
- Biocompatible Materials