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Grant Abstract
Protecting the pRivacy Of Genomes in REsearch StudieS (PROGRESS)
With the dramatic reduction in the cost of whole genome sequencing (WGS), genomic data are becoming increasingly available and have the potential to advance public health and promote personalized…- Algorithmic Analysis
- Algorithmic Software
- Architecture
- Award
- Biomedical informatics
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Grant Abstract
Secondary Uses of Health Information: Patient Preferences for Sharing and Consent
Health information technology (HIT) is believed to be central to improving the quality and cost effectiveness of health care in the United States. As a result of recent major federal investment, the…- Address
- American
- Belief
- Caring
- Clinical
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Publication
Allegations of misuse of African DNA in the UK: Will data protection legislation in South Africa be sufficient to prevent a recurrence?
Developing World BioethicsMoodley and Kleinsmidt emphasize the need for explicit discussions around benefit sharing and commercialization in consent models that incorporate broad consent as an option in South Africa. -
Publication
Patient and researcher stakeholder preferences for use of electronic health record data: A qualitative study to guide the design and development of a platform to honor patient preferences
Journal of the American Medical Informatics Association -
Publication
Expanding access to large-scale genomic data while promoting privacy: A game theoretic approach
American Journal of Human GeneticsThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009032 -
Publication
Challenges to building a gene variant commons to assess hereditary cancer risk: Results of a modified policy Delphi panel deliberation
Journal of Personalized Medicine -
Grant Abstract
Developing strategies for using DNA data to assist family reunifications across child development stages
PROJECT NARRATIVE No protocol exists for use of living children’s DNA to reunify families separated due to disasters, armed conflict, or migration, despite DNA data being a powerful biometric tool… -
Grant Abstract
Conceptual Frameworks for Genetics Policy
The purpose of this project is to analyze various conceptual frameworks for the development of policy with respect to genetics research, counseling, testing, screening, treatment and use of genetic…- Diagnostic tests
- Ethics
- Genetic Counseling
- Genetic Models
- Genetics
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Publication
Management of secondary genomic findings
Am J Hum GenetClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): HG200387 04 -