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Publication
Public and biobank participant attitudes toward genetic research participation and data sharing
Public Health Genomics -
Publication
Public health genomics knowledge and attitudes: A survey of public health educators in the United States
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Great expectations: Views of genetic research participants regarding current and future genetic studies
Genetics in Medicine -
Publication
The role of patients and patient advocacy groups in educating patients on the importance of legitimate scientific research
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Societal Impact of Human Genetic Engineering
The purpose of this project is to develop models for broad-based community dialogue to examine the value and ethical dimensions of emerging technologies in applied human genetics. The project will be…- curriculum
- Ethics
- genetic disorder
- genetic manipulation
- human population genetics
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Additional Resource
Infusing Ethics into the Development of Engineers: Exemplary Education Activities and Programs, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This National Academies Press publication describes 25 exemplary activities and programs that include ethics as part of their approach to developing engineering students.- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Knowledge of and attitudes about Alzheimer disease genetics: Report of a pilot survey and two focus groups
Community Genet -
Grant Abstract
Consent in Genetic Research: An International Trial
As the scientific study of genetic variation between human groups gains momentum around the world, traditional questions of research ethics are being transformed in ways that challenge our…- African
- African American
- behavioral /social science research tag
- breast neoplasms
- Clinical Research
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Additional Resource
Consensus Study Report, Conflict of Interest in Medical Research, Education, and Practice, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on the design of conflict of interest policies for the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding