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Maine State Statute (Maine: MRS 24A §2850 and 24A §2850-C )
An individual, group and blanket medical insurance contract subject to chapters 33 and 35 of Title 24A (with some exceptions) may not impose pre-existing condition exclusions based on genetic…- state statute
- Maine
- health insurance nondiscrimination
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Additional Resource
New York 2011 State Bills (New York 2011 A6478)
This bill prohibits any group or blanket health insurance policy from excluding coverage for any group member based on a predisposing genetic characteristic, and prohibits any hospital service…- state bill
- bill
- bill status died
- New York
- health insurance nondiscrimination
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Publication
“Should I let them know I have this?”: Multifaceted genetic discrimination and limited awareness of legal protections among individuals with hereditary cancer syndromes
Public Health Genomicsby Ridhi Gopalakrishnan, Jordan Sam, Carly Butkowsky, Emma Reble, Marc Clausen, Sepideh Rajeziesfahani, Brooklyn Sparkes, Vernie Aguda, Melyssa Aronson, Derrick Bishop, Lesa Dawson, Andrea Eisen… -
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Additional Resource
Consensus Study Report, Gene Drives on the Horizon: Advancing Science, Navigating Uncertainty, and Aligning Research with Public Values, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This National Academies Press publication outlines the state of the science, ethics, public engagement, and risk assessment and offers principles to guide responsible practices in gene drive research.- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Massachusetts State Statute (Massachusetts: MGL 176M §1 and 176J §1)
Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis under the definitions for chapter 176M on nongroup health plans and 176J on small group health…- state statute
- Massachusetts
- health insurance nondiscrimination
- genetic information
- Diagnosis
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Additional Resource
Minnesota 2017 State Bills (Minnesota 2017 HF 887)
A managed care organization that contracts with the health commissioner cannot discriminate or use any policy that has the effect of discriminating against people on the basis of genetic information…- state bill
- bill
- bill status died
- Minnesota
- health insurance nondiscrimination
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Additional Resource
Working Group Summaries, The Genomic Revolution: Implications for Treatment and Control of Infectious Disease, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2006)
This publication summarizes the proceedings of the conference, “The Genome Revolution: Implications for Treatment and Control of Infectious Disease.” Organizers challenged 11 conference working…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Pennsylvania 2017 State Bills (Pennsylvania 2017 HB 1846)
Provides for the notification of residents whose personal information data was or may have been disclosed due to a security system breach. Personal information includes genetic information. Died.…- state bill
- bill
- bill status died
- Pennsylvania
- genetic privacy