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Publication
An empirical assessment of the short-term impacts of a reading of Deborah Zoe Laufer's drama Informed Consent on attitudes and intentions to participate in genetic research
AJOB Empir BioethUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Predictors of women's intentions to communicate updated genetic test results to immediate and extended family members
Public Health GenomicsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Victims of eugenic sterilisation in Utah: Cohort demographics and estimate of living survivors
Lancet Reg Health AmUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Why we fear genetic informants: Using genetic genealogy to catch serial killers
Columbia Sci Technol Law RevUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Uptake of genetic counseling and multi-gene panel testing among women in the Intermountain West with previous negative BRCA1 and BRCA2 results contacted for updated testing
J Genet CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Decision making for adolescents and young adults with differences of sex development
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Exploring social and ethical considerations for adolescents and young adults with congenital heart disease: A qualitative study
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Video
Utah Genome Project - Informed Consent
This video on informed consent was created for the Utah Genome Project. University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
The (new) science of race: Communicating and constructing Blackness through genetic ancestry testing
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Research Tool
Data Dictionary: Assessing the Financial Burden of Genetic Testing
Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The data dictionary for this study outlines the structure, content, and variable definitions for the…