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Publication
What we know about effective public engagement on CRISPR and beyond
PNASScheufele and colleagues review existing modalities to engage the public in decision-making about emerging technologies and outline a pathway for effective deliberation on gene editing. -
Video
Developing Pathways for Community-led Research with Big Data: A Content Analysis of Stakeholder Interviews
Megan Doerr, MS, LGC - Sage Bionetworks & Joon-Ho Yu, MPH. PhD - University of Washington ELSIconversations - March 5, 2021 Big data (BD) informs nearly every aspect of our lives and, in health…- Big Data
- Community Engagement
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Grant Abstract
Indigenous Communities and Human Microbiome Research
This project is an investigation of the implications of research on ancient and contemporary human microbiomes for the social and ancestral identities of indigenous people. It will engage indigenous…- Americas
- Apache Indians
- base
- Biology
- Categories
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Video
Engaging Participants as Partners: ELSI Considerations in Large-Scale Precision Medicine Research
To be relevant and impactful, it has become increasingly necessary for researchers to engage stakeholders outside the usual research communities, such as patients and community representatives. Yet,… -
Publication
Relationships hold the key to trustworthy and productive translational science: Recommendations for expanding community engagement in biomedical research
Clinical and Translational Science -
Grant Abstract
African American Haplotype Map Engagement and Follow-up
This is a proposal for undertaking community engagement, donor collection, and follow-up in four predominantly African American towns in the Oklahoma City metropolitan area. The precise four towns…- African American
- biotechnology
- blood chemistry
- Clinical Research
- Gene Expression