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Publication
Marginalized measures: The harmonization of diversity in precision medicine research
Social Studies of Science -
Publication
The impact of communicating uncertainty on public responses to precision medicine research
Annals of Behavioral Medicine -
Publication
Precision medicine, data, and the anthropology of social status
American Journal of Bioethics -
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Publication
Thought leader perspectives on participant protections in precision medicine research
Journal of Law, Medicine & Ethic -
Video
New Models for Ethical AI in Precision Medicine: Empirical and Normative ELSI Inquiry
The convergence of genomics, information sciences and Electronic Health Records is a main driver of precision medicine (PM). A common feature of definitions of PM is the use of big data for… -
Video
Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Pre-recorded Paper Rachel Bailey, ABD - University of Georgia, Graduate Student Teaching Assistant: Investigating an Ethos of Duty in Precision Medicine Research Calls…- Education
- public reception of genetic science
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Publication
Thought leader perspectives on benefits and harms in precision medicine research
PLoS One -
Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholders engagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians