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Video
May 2024 ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned
Health research is undergoing a gradual but transformative shift, where patients and study communities no longer want to be passive participants in health research but active collaborators. However,…- ELSI
- Sickle Cell
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Video
ELSIcon2022 Panel: The Limits of Consent and Patterns of Coercion in U.S. Histories of Eugenic Sterilization
ELSIcon2022 • Panel 11 • June 1, 2022 Nicole Novak, Heather Dron, Marie Kaniecki, Levity Smith, Juan Gudino This panel showcases recent research by the Sterilization and Social Justice Lab, a…- Live
- Panel
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Publication
How families communicate about HNPCC genetic testing: Findings from a qualitative study
American Journal of Medical Genetics Part C: Seminars in Medical Genetics -
Additional Resource
Idaho State Statute (Idaho: IC §§41-2221, 41-3940, and 41-4708)
General managed care plans and health benefit plans covering large and small employers may not treat genetic information in the absence of a diagnosis as a pre-existing condition.- state statute
- Idaho
- nondiscrimination
- insurance nondiscrimination
- genetic predisposition
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Grant Abstract
African American Participation in Cancer Genetics Research
Despite significant efforts, African Americans continue to experience excess rates of morbidity and mortality from all forms of cancer relative to individuals from other ethnic and racial groups.…- African American
- Age
- Altruism
- Atlases
- Attitude
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Publication
Ability of patients to distinguish among cardiac genomic variant subclassifications
Genomic and precision medicine -
Additional Resource
California State Statute (California: Cal. Health and Safety Code §1358.24, and Insurance Code §10192.24)
An issuer of a Medicare supplement contract must adhere to the requirements imposed by the federal Genetic Information Nondiscrimination Act of 2008 (Public Law 110-233).- state statute
- statute
- California
- Medicare
- Genetic Information Nondiscrimination Act
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Publication
Assessing barriers to the career ladder and professional development for ethnic minority genetic counselors in the United States
Journal of Genetic Counseling