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4021 - 4030 of 7318 Topics
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Publication
Noninvasive prenatal genetic testing: Current and emerging ethical, legal, and social issues
Annual Review of Genomics and Human Genetics -
Publication
Bioethics searchers guides: Using databases of the National Library of Medicine and National Reference Center for Bioethics Literature
Kennedy Institute of Ethics, Georgetown University -
Additional Resource
North Dakota State Statute (North Dakota: NDCC §25-17-07)
A person that conducts research on blood spots, other specimens, or registry data maintained by the health department must follow IRB processes for human subjects research, including obtaining parent…- state statute
- North Dakota
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Publication
An incidental finding in prenatal exome sequencing-A case study and review of the clinical and ethical considerations
American Journal of Medical Genetics Part A -
Publication
Ability of patients to distinguish among cardiac genomic variant subclassifications
Circ Genom Precis MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): HG20038703 -
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Additional Resource
Illinois 2019 State Bills (Illinois 2019 SB 1307)
Amends the Genetic Information Privacy Act provisions concerning uses and disclosures for treatment, payment, health care operations, health oversight activities, and public health activities; uses…- state bill
- bill
- Illinois
- bill status pending
- genetic information privacy act
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Additional Resource
Montana 2015 State Bills (Montana 2015 HB 501)
This bill requires parental consent or consent from a student 18 years or older prior to collecting or recording biometric data, which is defined to include a DNA sequence. Died. Bill Status: Died- state bill
- bill
- bill status died
- Montana
- genetic privacy
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Additional Resource
Consensus Study Report, The California Institute of Regenerative Medicine: Science, Governance, and the Pursuit of Cures, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2013)
This National Academies Press publication outlines the findings, conclusions, and recommendations of an evaluation conducted by the Committee on a Review of the California Institute for Regenerative…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding