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Additional Resource
Consensus Study Report, Proposed Revisions to the Common Rule for the Protection of Human Subjects in the Behavioral and Social Sciences, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on human subjects protections in social and behavioral…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Maryland 2020 State Bills (Maryland 2020 SB 738)
Declares that it is the policy of the state to provide affordable health care to all regardless of various factors, including genetic information. Prohibits discrimination based on genetic…- state bill
- bill
- bill status died
- Maryland
- health insurance nondiscrimination
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Additional Resource
Nebraska State Statute (Nebraska: NRS §44-787)
A health carrier that decides to discontinue offering a particular type of individual policy or contract in the state and offer another option of coverage must act uniformly without regard to health…- state statute
- Nebraska
- health insurance nondiscrimination
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Publication
Unpacking the notion of “serious” genetic conditions: Towards implementation in reproductive decision-making?
European Journal of Human Genetics -
Publication
Unpacking the notion of "serious" genetic conditions: Towards implementation in reproductive decision-making?
European Journal of Human Genetics -
Additional Resource
Maine State Statute (Maine: MRS 24A § 2159-C and 24A § 6981 )
A carrier that issues individual or group hospital, health or dental insurance and the Dirigo Health Self-administered Plan may not discriminate against an individual or eligible dependent on the…- state statute
- Maine
- health insurance nondiscrimination
- disability
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Video
Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia: Cases of Ethical, Legal, and Social Complexities from a Pragmatic Trial
ELSIcon2022 • Pre-recorded Panel Gemme Campbell-Salome - Geisinger Amy Sturm Kelly Morgan Eric Tricou, MS, CGC - Geisinger, Genetic Counselor Innovating Equitable Communication Modalities for…- Genetic Testing
- Genetic Screening
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Publication
Using intellectual property rights to stimulate pharmaceutical production in developing countries: A reference guide
United Nations PublicationsDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
How Australia's policymakers can ethically approach human germline genome editing technology
Journal of Law and Medicine