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Publication
Biobanks containing clinical specimens: Defining characteristics, policies, and practices
Clinical Biochemistry -
Additional Resource
Policy Statements, American College of Medical Genetics and Genomics
The Advocacy Committee of the American College of Medical Genetics and Genomics (ACMG), chaired by Sheila Dobin, releases policy statements to promote the responsible application of genomics in…- genetic information
- points-to-consider
- policy statement
- consideration
- Recommendation
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Publication
Dobbs and the future of health data privacy for patients and healthcare organizations
Journal of the American Medical Informatics AssociationClayton, Embí, and Malin describe how state laws that limit or ban abortion may result in new threats to health information security and outline policy options. -
Additional Resource
Technical Report, Ethical and Policy Issues in Genetic Testing and Screening of Children, American Academy of Pediatrics (AAP) and the American College of Medical Genetics and Genomics (AMCG)
This technical report, authored by Laine Friedman Ross, Howard M. Saal, Karen L. David, Rebecca R. Anderson, the American Academy of Pediatrics, and the American College of Medical Genetics and…- technical report
- genetic testing
- Genetic Screening
- Children
- American Academy of Pediatrics
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Grant Abstract
Public input in the development of federal genetic non-discrimination policy
We examine the extent of public participation and influence in the shaping of legislation that regulates the permissible uses of information related to genetic testing. We propose to investigate…- Clinical Research
- Genetics
- Health
- Hearing
- Housing
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Publication
Advocating for equitable management of hereditary cancer syndromes
Journal of Genetic Counseling -
Job Posting
Bioethics and Health Policy Faculty (Open Rank)
Summary The Center for Medical Ethics and Health Policy at Baylor College of Medicine invites applications for an open rank tenure-track/tenured faculty position to begin in Summer 2024. While we…- Health Policy
- medical ethics
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Video
A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Pre-recorded Paper Jihyun Yang - Yonsei University College of Medicine Ilhak Lee Hyun-Young Park Chai Hee Youl Jeong Eun Kim Hannah Kim Jihyun Yang A Survey on Public…- law
- Regulation
- Governance
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Publication
The new EU–US data protection framework’s implications for healthcare
Journal of Law and the Biosciences -