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Publication
You never call, you never write: Why return of 'omic' results to research participants is both a good idea and a moral imperative
Per MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Video
Integrating ELSI and Genomics: Past, Present and Future (Keynote)
In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research… -
News
National Library of Medicine (NLM) Digitized Document Collection from USPHS Untreated Syphilis Study at Tuskegee
CERA is pleased to share the announcement that the NLM has digitized a collection of 3,000 documents related to the U.S. Public Health Service (USPHS) Untreated Syphilis Study at Tuskegee,… -
Video
ELSIcon2022 Panel: Beyond the Binary: A Panel Discussion About Gender, Genomics, and Justice
ELSIcon2022 • Panel Session 3 • May 31, 2022 Leila Jamal, Tala Berro, Kellan Baker, Kimberly Zayhowski The term gender diversity refers to a spectrum of identities that exist on a continuum…- Live
- Panel
- Stigma and discrimination
- health disparities
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Additional Resource
Pennsylvania 2016 State Bills (Pennsylvania 2016 HB 1910)
Amends the Breach of Personal Information Notification Act, providing for the notification of residents whose personal information data was or may have been disclosed due to a security system breach…- state bill
- bill
- bill status died
- Pennsylvania
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Grant Abstract
The Human Genome Project: Human and Scientific Dimensions
The MCET and a community of academics, researchers and practitioners have designed an interdisciplinary educational program about the ethical, social and legal implications of the HGP. Using multiple…- biotechnology
- curriculum
- education evaluation /planning
- Ethics
- genetic techniques
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Publication
Paving the path for implementation of clinical genomic sequencing globally: Are we ready?
Health Affairs Scholar -
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