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Publication
Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children
Clinical Genetics -
Publication
Preferences for results delivery from exome sequencing/genome sequencing
Genetics in Medicine -
Publication
Evaluation of genetic tests: APOE genotyping for the diagnosis of Alzheimer disease
Genetic Testing -
Publication
“Not tied up neatly with a bow”: Professionals’ challenging cases in informed consent for genomic sequencing
J Genet Counsel -
Additional Resource
Minnesota State Statute (Minnesota: MS §176.138)
Medical data collected, stored, used, or disseminated by or filed with the commissioner in connection with a claim for workers' compensation benefits does not constitute genetic information for…- state statute
- Minnesota
- genetic privacy
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Video
ELSIcon2022 Paper: How useful is genome sequencing to parents of pediatric cancer patients? Findings from the Texas KidsCanSeq Study
ELSIcon2022 • Paper • May 27, 2022 Janet Malek, Jill Robinson, Hadley Stevens Smith, Amanda Gutierrez, Sarah Classen, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire The ongoing Texas…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: Parent-reported barriers and facilitators to accessing care recommended from genomic sequencing in pediatric cancer patients
ELSIcon2022 • Paper • June 3, 2022 Presented by: Blake Vuocolo Mary Majumder, Jill Robinson, Amanda Gutierrez, Lauren Desrosiers, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire…- Live
- Paper
- Access to genetic screening and therapies
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Publication
Rectifying or reinforcing? The (in)equity implications of recontacting practices in genomic medicine
Hastings Center Report